Showing posts with label kids. Show all posts

Time

"My son is four and he still refuses to even try to use the potty and I was wondering when..."

"My kid started OT three months ago and my husband and I still haven't seen any improvement so when..." 

"When did your Kiddo start eating?  I swear I could deal with the picky eating if I just knew when it would end..." 


Every time I see "when" in a sentence about autism and a young child, I sigh.  Not a "Gee, these people are so clueless." one.  More like "Oh yeah, I remember when I still 
couldn't let go of those milestone moments too."  Oh newbies.  Welcome to #TeamQuirky!  A life where you learn schedules really can help your child with autism and yet there's no real set standard of one to follow.  Come sit by me at this lunch table.  I am part of your tribe. 

I get it.  Your little one is in front of you and you are still consulting all your parenting books about what they should be doing at that age.  You see the time slipping away from you.  Why aren't they following the instructions?   You want to fix the problem. You are running out of time!

Here's the thing sport.  You must chill out.  There's a person that needs a time out right now and it's you.  I know. I know.  You're rattling off the screen right now about the importance of early intervention and how your child is falling behind and you have a limited window of time and yadda, yadda, yadda...  I hear you.  I know that song. Hell, I wrote that song.  The milestones?  The benchmarks? Guess who's in charge of that? I'll give you a hint.  NOT YOU! ...


Read the full blog post at Autism with a side of fries.

http://autismwithasideoffries.blogspot.com/2015/08/time.html

5 Things a Prenatal Test May Not Tell You About Your Baby

By Melanie Gomez

This wasn’t the first time I found myself comforting a pregnant momma whose doctors have diagnosed a problem with her unborn child. Prenatal tests indicated her child to be imperfect and that termination would be in the family’s best interest. I’ve experienced these conversations before. The doctor will provide all of the medical and cognitive complications that will very likely be present at birth.
I have no issue with doctors presenting the facts to parents so they can make an informed decision. Families make these impossible decisions every day. My only issue is that doctors can’t inform any parent completely. Their prognosis can leave out extremely important factors parents should know.
I have the privilege of knowing several children whose parents were given that same advice. These children have undergone multiple surgeries, and their families have faced many challenges to keep their children’s lives going, literally and figuratively. Those parents and their sweet children, along with my own, testify to the “facts” of being a special needs family that a medical prediction doesn’t include.
For the benefit of my sweet friend who is now facing this decision, I’ve compiled an incomplete list of things your child’s diagnosis may not tell you:
1. A child with special needs can change your life for the better.
You can discover places in your heart you never knew existed. They’re like untapped fountains that can only be opened by a child with special needs. I know special needs parents who have found their life’s calling wrapped up in this journey.
2. A child with special needs can unleash the fighter inside you that you never knew existed.
You can become stronger, more fierce and every area of your life will be affected forever. You can attain a new level of toughness and resiliency...
Get the full list at The Mighty.
http://themighty.com/2015/08/5-things-a-prenatal-test-may-not-tell-you-about-your-baby/

ADHD: Psychiatric Epidemic or Hype?

By Dr. Marcel de Roos

For teachers the perfect class is a concentrated, quiet and obedient one. Nowadays, when children stand out by what used to be called naughty, rebellious and boisterous behavior, it is much easier than before for teachers to have these children drugged with for example Ritalin or Concerta (psycho-stimulant medications). For psychiatrists, jotting down abbreviations like ADHD, PDD-NOS and ODD and subsequently prescribing drugs has become routine.
Is there a psychiatric epidemic or is there something else going on? Leading American psychiatrists (for example Dr. Allen Frances) think that ADHD (supposedly an attention and hyperactivity disorder) is severely over-diagnosed; it’s a false epidemic. Before 2000, only very serious cases were labeled with this diagnosis and only people who really needed it, were allowed to receive medication. As a consequence of the less stringent definition after 2000, the diagnosis of ADHD has increased spectacularly. Everybody now knows somebody with ADHD.
Another reason might be that qualities that used to be attributed typically to boys such as an urge for noisiness, action and forcefulness were formerly accepted, but are now regarded as a problem, especially at schools. It appears that not the boys, but the educators have changed. Boys are in essence the same as before, but the school system has become more feminine and looks upon their abundance of physical energy and enthusiasm as being an issue.
For concentration problems without hyperactivity, a separate category was devised called ODD (Oppositional Defiant Disorder). Therefore, many girls and women were included into the diagnostic criteria. PDD-NOS (Pervasive developmental disorder not otherwise specified) was brought in as a kind of residual category for people who don’t quite fit into other more specific categories...
For the full story, head over to CCHR International.
http://www.cchrint.org/2015/07/03/adhd-psychiatric-epidemic-or-hype/

Mental Illness and School: Parents and Teachers This Year CAN Be a Success!

By Leisl Stoufer

Our son, Cody, began presenting signs that something was “wrong” at a very young age.  The first “red flag” went up when he was just eighteen months old.  By the time he was two we were becoming more and more concerned, but as new parents we assumed that our “Terrible Twos” were just exceptionally terrible.
But the “Terrible Twos” turned into the “Horrible Threes” and the pre-school years were even worse!
Exhausted, we decided to enroll Cody in a pre-school program.  As an only child, we thought that interaction with other kids would be a good idea.  We found a reputable program and  signed Cody up.  We were thrilled.
But almost immediately, I began receiving phone calls.
“Cody is in trouble”
“Cody didn’t follow directions.”
“Cody was aggressive.”
“Cody wasn’t able to be still during story time.”
“Cody was written up again today”
“Parents are complaining about Cody”
And finally….
“Cody can no longer attend our program.”
And so we tried another school.
And another.
And another after that.
We got kicked out of every one.
All I heard was how difficult Cody was and how I had no control over my child.
But they couldn’t control him either.
I began to internalize the criticism and before long I was convinced I was a terrible mom.  All the other kids behaved.  Why couldn’t I get it right?
My self esteem was shot.
I can only imagine how Cody must have felt.
I knew that Cody was a challenge.  I lived with him.  (Believe me,  I knew!)  But I needed respite and I needed help!  If I couldn’t handle him and the professionals couldn’t handle him, what were we supposed to do?
Desperate for help and answers, we tried one more pre-school, at the local Baptist Church, and we were blessed with an incredible teacher named Ms. Pam.
Ms. Pam worked with Cody and she was willing to “think outside the box”.  Instead of making Cody sit still during story time, she allowed Cody to play with legos or blocks.  When she asked him to tell her about the story, he was able to recite the storybook word for word.  Her system worked!  Ms. Pam loved Cody and she recognized Cody as a precious child of God.  Cody graduated from Ms. Pam’s class and he even participated in the end of the year program.  We will never forget Ms. Pam.
The following year we enrolled Cody in a Pre-K special education program.  When I went to pick Cody up the first day, I dreaded hearing what the teacher would say.  Bracing myself for criticism, tears filled my eyes when the teacher told me that Cody was a helper and he had an excellent vocabulary.  She only offered praise.
Through my tears, I looked at her curiously, waiting  . . .  and wondering . . .
But before I could ask my question, she answered it.  She said, “You already know all of the bad things. I want you to know the good things.”
I still get choked up thinking about those words.
Twelve years and multiple hospitalizations later, Cody  is now sixteen-years-old.  He has a diagnosis of Bi-Polar Disorder and ADHD, he is oppositional and defiant and he has sensory processing issues. Cody is a sick kiddo, but he is also very smart, very mechanical, incredibly loving and kind, he is artistic, and he has a great sense of humor.  We adore Cody.
And Cody suffers from mental illness.
Cody is currently getting his education at a residential treatment center in Utah. This is his second time to be placed in a residential setting.  Sending our son to live somewhere else has been devastating, yet we have fought for these services.  Cody is sick and Cody requires a higher level of care.  The best news is that Cody is thriving in his new placement.  We are thrilled!
Over the years, as we have navigated our nation’s failed mental health care system, and worked with our educators to help our son, I have learned some important lessons .  Thankfully, I no longer hang my head in guilt and shame . . .  In fact, I am proud to say I have learned to effectively advocate for my child.  With the help of our school district, we have finally found some success.
Parents and Teachers, this is for you.  As we enter into a new school year, I want to encourage you. You all play a significant role in the lives of children affected by brain disorders.  Your partnership is critical to the success of the child...
Read Leisl's advice at Bold Faced Ministries.
http://www.leislstoufer.com/?p=1025

'We were all crying': Teachers left 'speechless' by stranger who picked up tab for students with autism

Marisa Kabas
A group of students and staffers got a surprise treat when a Good Samaritan secretly picked up the check.
Jeannette Gruskowski
A group of students and staffers got a surprise treat when a Good Samaritan secretly picked up the check.
A school trip to a local restaurant turned into an emotional and wonderful experience for a group of students with autism this month, thanks to a kind act from a complete stranger.
Teachers, paraprofessionals and speech therapists from Matthew Jago elementary school in Sewaren, N.J. took a group of students in the school's autism classes to Jose Tejas Restaurant in nearby Iselin on May 6, in honor of Cinco de Mayo and Teacher Appreciation Day.
The 21 staff members and 26 children enjoyed a festive meal, and when it came time to pay the $485 bill, they received a major surprise: The manager told them it had already been taken care of by another patron.

"We were all crying," said one of the teachers, Jeannette Gruskowski, of the moment they heard the news. "We couldn't believe it. We were all speechless.''
This is a thank you card from students to an anonymous patron at Jose Tejas Restaurant. Students in autism classes at Matthew Jago School who took a C...
Kathy Johnson/MyCentralJersey / Courier News
A thank you card from students to an anonymous patron who paid for their lunch at Jose Tejas Restaurant.
The meal was supposed to be paid for by the staff and by the children's parents, and the group was bowled over by the kindness of a complete stranger.
"The manager had told us that she's a grandparent of child with special needs," Gruskowski explained. "And she was so touched by us being there with the kids on Teacher Appreciation Day."

The woman chose to remain anonymous, emphasizing the selflessness of her generosity.
Gruskowski has been a teacher at the school since 2006, and says teachers frequently take the kids out into the community, often pegged to different events and holidays. They've gone to the mall to see Santa for Christmas, and the Fire Department for Fire Prevention Week, but she's never experienced anything like this in past outings: "Not to this extent. It's amazing."

Read the full article at TODAY

(http://www.today.com/news/we-were-all-crying-teachers-left-speechless-stranger-who-picked-2D79676931)

Couple Prays to Adopt Baby With Down Syndrome, Watch Them Meet Their Beautiful Daughter

by Liberty Pike | Washington, DC | LifeNews.com | 5/15/14
When was the last time one of your expecting friends said to you: “I hope this baby has Down syndrome?”
sunflowermae2…awkward silence…
You’ve probably never, ever heard that before, but now, you have. Andy and Mercedes Lara said that to their parents one day. Except they weren’t having a baby the “traditional” way. They felt called to adopt and not to adopt a “normal” baby but one with Down syndrome.
Why would a young, vibrant couple want to adopt a child with lifelong needs? Andy gave an insight into their story with this from their adoption fundraising site:
We had committed as a part of our marriage that we would adopt children no matter what God would bring us, and we decided to start this year.
Mercedes has worked in the Special Needs industry for 9 years and she expressed her heart’s desire to me to adopt a child with Down syndrome, and I agreed and moved forward.  Mercedes is an advocate and an educator for people with Special Needs and I couldn’t feel surer of this blessing to pursue.
Read the full article and view the attached video at Life News 
(http://www.lifenews.com/2014/05/15/couple-prays-to-adopt-baby-with-down-syndrome-watch-them-meet-their-beautiful-daughter/)
SPORK! Similar Picks:

Doctor Tells Expectant Parents of Baby With Down Syndrome They’re a “Lucky Couple”

How amusement parks are becoming handicap accessible

By: Paisley Hansen

The Americans with Disabilities Act (ADA) provides broad protections for people with disabilities to prevent discrimination. The Act maintains that places of public accommodation must be accessible to those with disabilities. Amusement parks have a duty to ensure that they comply with the ADA.

Those who have disabilities often cannot endure waiting in long lines in hot weather. Amusement parks provide individuals with “fast passes” that allow them to cut lines if they have a disability. Amusement parks are increasingly trying to take the needs of individuals with disabilities into consideration.

The Impact of the Americans with Disabilities Act (ADA) in Amusement Parks

The United States Access Board currently advances regulations in regards to treatment of people with disabilities by businesses throughout the U.S. The Board also maintains accessibility guidelines that businesses may use in determining how to proceed with treatment of individuals with disabilities. Recreation facilities, such as amusement parks, can consult the numerous articles available at  www.access-board.gov.

Today, the ADA covers a broad spectrum of facilities within amusement parks. The ADA provides guidelines for the creation of amusement rides, miniature golf courses, fishing piers, water rides, boating facilities, swimming pools, bowling lanes, exercise equipment and shooting facilities.

Accessibility Guidelines for Individuals with Disabilities at Amusement Parks

The ADA guidelines maintain that each newly constructed amusement ride must contain at least one space that is designated for a wheelc. The Act also encourages operators to increase the number of wheelchair-accessible seats beyond the requirement to ensure that additional family members can ride with loved ones.

Rides must also feature an accessible route for people with disabilities. The accessible route must feature a load and unload area. Rides that are only controlled by the rider, such as bumper cars, do not need to comply with the guidelines under the ADA. Also, carnival rides and state festival rides do not need to comply with the ADA.

Rides that provide wheelchair spaces should be designed to meet minimum space requirements and clearances. A wheelchair lift like this can be used for the loading and unloading process. The lift should be completely secure so that there is no room for a wheelchair to fall.

Amusement Parks Catering to the Needs of People with Disabilities

Numerous amusement parks make a concentrated effort to provide accessibility for people with disabilities. Morgan’s Wonderland is one of the leading theme parks for individuals with disabilities. It is located in San Antonio, TX. The Gordon Hartman Family Foundation created the theme park. The founder’s daughter, who is sixteen and has autism, inspired the inclusion objective of the theme park. The theme park promotes full inclusion of people with disabilities, and admission is free for guests with special needs. The admission rates are also very affordable, and children only need to pay $10 for admission. The theme park contains rides that can be fully operated by people in a wheelchair, such as small go-carts on a track. The theme park also provides quiet retreat spaces for visitors who may become overwhelmed by the experience, such as a “magical garden.”

Holiday World is another amusement park that is committed to the inclusion of people with disabilities. People with disabilities can pay a reduced admission fee once a year. A special boarding pass is also available for those with disabilities. Individuals may pre-schedule a boarding time for a ride and avoid long lines. Legoland also gives ride access passes to those who have disabilities. The pass allows a guest and three companions to bypass lines for up to 10 rides in a day.

Special needs individuals who are interested in going to a theme park should contact the customer service departments of the theme park. Many theme parks do not publicly post their “free pass” or “fast pass” policies available for those who have disabilities to prevent people without disabilities from taking advantage of the policies. Instead, individuals should speak with a customer service representative to learn more about the facilities and fast pass options that may be available to them.

Read more at www.sporkability.org 

Timothy Archibald talks Photography and Autism Awareness


Timothy Archibald has received acclaim in the news for taking photos of his son Eli who has autism. The “ECHOLILIA Series” as Timothy calls it was started when his son was 5 and lasted untill he was 8. You can see more photos from his series here.

Can you tell us more on how the Echolilia Series started and what you hoped to gain from it?
Well, like most things, it just began as a reaction. My son was five, had just started Kindergarten, and suddenly every moment and every topic in the house revolved around Eli. The school wants to know why is he acting a certain way? The parents have questions about Eli…Eli this, Eli that….everyone was suddenly trying to address this unusual behavior or simply this bit of unusual something that inhabited Eli. My wife and I didn’t really know anything was up…we just knew he always was a challenge. But after our second son grew older and we started to see what a non autistic child was like…we started to get an idea that things were different with Eli. In an attempt to gain some control over this situation, I begain photographing him during times we were together and alone. 
Like most kids, you can’t really make Eli do something if he doesn’t want to. So he wasn’t very interested in being in the photo alone. But if he could collaborate, if he could suggest the pose, the idea the structure, then he was very much into it. That began our process.
Read the full article at Autism Speaks 
(http://www.autismspeaks.org/news/news-item/timothy-archibald-talks-photography-and-autism-awareness)

Hear this: Listening device helps children with autism


29 November 2013

In a classroom buzzing with noise, children with autism — especially those who also have hearing problems — can find it challenging to tune in.
A study published earlier this year found that 6 percent of children with hearing problems have autism, compared with 1 percent of the general population. Still, there is little research exploring devices that improve hearing in these children.
A new study, published 30 October in The Journal of Pediatrics, reports that a wireless radio-frequency listening device helps children with autism hear teachers talk, which in turn improves their social interactions and learning.
With this kind of system, a teacher wears a wireless microphone, usually on her lapel. A transmitter relays her voice to a receiver and earpiece worn by the child...
Read the full article at Sfari
(http://sfari.org/news-and-opinion/blog/2013/hear-this-listening-device-helps-children-with-autism)

Digital education shouldn’t bypass disabled


By Kyle Shachmut

 |   
  SEPTEMBER 09, 2013


The Braille terminal is one type of aid for visually impaired computer users.
ASSOCIATED PRESS/FILE
The Braille terminal is one type of aid for visually impaired computer users.

AS STUDENTS return to school this fall, most will find a plethora of new technologies and virtual environments, on which their institutions have been spending millions of dollars to bring into the classroom. Yet many of these resources will be needlessly discriminatory. What would happen if an institution constructed a new state-of-the-art building but neglected to make it accessible to the disabled? People would rightly be outraged. Yet even as new technology-rich environments revolutionize the classroom, few make provision for people who are blind, dyslexic, or otherwise print-disabled.
Just like buildings, digital resources can be made accessible to all through good design and planning. Electronic resources should be inherently accessible; for most people, the zeroes and ones that make up digital content are translated for display on screens, but the same information can be transmitted audibly or connected to an accessory that puts it into Braille. Mainstream touchscreen devices like the iPad and iPhone are fully accessible to blind users right out of the box.
Read the full article at Boston Globe 
(http://www.bostonglobe.com/opinion/2013/09/08/classroom-technology-must-accessible-those-with-disabilities/svRyLPnmnBSNCDUuQaUEVJ/story.html)

To prevent school violence, teachers learn how to spot mental illness


By Erika Angulo, Producer, NBC News
In classrooms across the country, teachers are going back to school to learn how to spot symptoms of mental illness among their students.
It's all part of an effort to prevent incidents such as this week's shooting at an elementary school in Georgia, which could have ended in disaster were it not for the quick thinking of school bookkeeper Antoinette Tuff. Suspect 20-year-old Michael Brandon Hill told Tuff he was mentally unstable and had nothing to live for, but she calmed him down, and convinced him to surrender.  
Mental illness also played a role in the December shooting deaths at Sandy Hook Elementary in Newton, Conn., and the massacre at Columbine High School in Colorado 14 years ago.
Read the full story at NBC News

Best Playtime Activities For Kids with Autism


By Deborah Mitchell  August 19, 2013 - 11:59am for eMaxHealth
Young children love to play, but the types of playtime activities they are drawn to differ, and this is true for kids with autism spectrum disorders (ASD) as well. Researchers in New York state have identified playtime options that seem to appeal to children with ASD, which may help parents make choices for their kids.

What type of play attracts kids with autism?

Based on the research conducted by Kathy Ralabate Doody, assistant professor of exceptional education at SUNY Buffalo State, and Jana Mertz, program coordinator at the Autism Spectrum disorder Center at the Women & Children’s Hospital of Buffalo, the good news is that kids with autism seem to respond well to a great number of different types of toys and activities.
Basically, the researchers found that kids with autism gravitate toward options that involve repetitive movement, lots of sensory feedback, and play items that allow them to experience cause-and-effect. The study was conducted in a children’s museum that has exhibits designed to attract kids with opportunities to play. Each month, the museum has an event that is open to families who have children with ASD.
Read the full article at E Max Health 

Kids Who Have A Sibling With Autism Are 7 Times More Likely To Be Diagnosed As Well (STUDY)


Posted: 

By Genevra Pittman
NEW YORK | Wed Aug 21, 2013 9:36am EDT
(Reuters Health) - Children who have an older sibling with autism are seven times more likely than other kids to be diagnosed with the disorder themselves, according to a new study from Denmark.
That extra risk is smaller than had been suggested in earlier studies.
Researchers also found a higher-than-average risk among children whose older half-sibling had an autism spectrum disorder (ASD) - especially if the two kids shared the same mother.
"I think a lot of autism researchers agree that the causes of autism are many and it's very complex," Therese Gronborg, who led the study at Aarhus University, said.
"If it was only genetics we would see a much higher recurrence rate" among siblings, she told Reuters Health.

About one in every 88 U.S. children has an ASD, according to the Centers for Disease Control and Prevention.
Read more at the Huffington Post 

10 Reasons I’m Blessed to Be Raising My Two Kids with Down Syndrome

By ELIANA TARDIO

It has been more than 6 years since my daughter was born. Her unexpected diagnosis of Down syndrome kept me frozen and living with uncertainty for her first few weeks of life. I already had a child with Down syndrome, my 2 year-old son, and becoming the mother of two kids with Down syndrome really made me think of the future and my ability to take care of two kids with special needs.
In general she was a very healthy newborn. She was born two weeks before her due date (my water broke while I was running to catch my son in a pool party), but she was already a healthy 7 pounds and 19 inches long—pretty good weight and height for a baby with an extra chromosome. I delivered her after 12 hours of labor, with no epidural and no pain medicine. I always knew I wanted to be completely conscious when I first held her in my arms and welcomed her. I didn’t know if she would be born with Down syndrome, so I also wanted to look at her closely for any sign of condition. It turned out I didn’t need to, as her characteristics were very obvious and the nurse told me about her condition immediately after she was born.
The first thought that came to my mind was, “Oh my God. This cannot be happening to me again.” Suddenly I heard myself sobbing, but it was weird feeling. My mind was still processing but my body was already reacting to the biggest fear of my life: having a second child with Down syndrome.
Read the full list at Babble