Showing posts with label health. Show all posts

12 Things Not to Say to Someone Who Has a Chronic Illness


By Tess Koman

1. "At least it's not cancer." You're right! Every day I am so insanely grateful that it's not [X horrible disease], but that doesn't mean I want to be reminded of it. I feel terrible that other people have it worse than I do, but it actually helps me to mope a little bit about how badly I've got it some days. I'm allowed to mope no matter how big my problems are comparatively.
2. "Oh, yeah, I get terrible cramps/pains/aches too." Girl, I'm sure you do. And I am not taking away from whatever miserable thing happens when you get your period because periods suuuck. That being said, I don't really want to compare your cramps or whatever to something that's sent me to the hospital a few times.
3. "You have to get your stress under control." Totally. I totally do! There is absolutely a connection between mental health and physical health, and I am constantly reminded of this when I manage to actually make myself sick. Thank you though for adding to my stresses about being stressed.
4. "But you look OK!" It takes a lot of time and effort for me to look OK some days. What you're looking at is a fully medicated, sometimes self-conscious, totally-prepared-in-case-of-disaster human who doesn't want you looking at her like she is nothing more than her disease. I'm happy to hear you judge a book by its cover though!
5. "Have you tried X drug? Or Y drug?" I truly appreciate your concern (and curiosity! I never mind if you ask respectful questions.) and I know you WebMD'ed my illness after the last time we spoke because you care. That being said, I tried that drug (and that other drug. And probably, like, seven other drugs) a few years ago at the suggestion of my doctor ... who has an M.D.
6. "My cousin's friend's sister has that and it's not so bad." The weird thing about bodies is that they're all different. Your immune system is different than my immune system and my problems are different than your cousin's friend's sister's problems.
See the rest of the list at Cosmopolitan.
http://www.cosmopolitan.com/lifestyle/news/a42927/things-not-to-say-to-someone-who-has-a-chronic-illness/

How To Get The Work Out In

By: Paisley Hansen
writer at the Mobility Resource

Living with a disability can be difficult, and it's not just the medical costs or care requirements that are a burden. For many people, the lack of independence can be especially hard to swallow, especially if the disability occurred suddenly. Fortunately, there are many things you can do to improve life with a disability and to gain back your independence. One great way to gain back independence is through exercise.


Exercise
Exercise is not necessarily easy for anyone, but can be especially tough if you're living with a disability. Many kinds of disabilities can limit workout potential due to reduced range of motion, pain, disfigurement, confinement to a wheelchair, atrophied muscles, broken bones or other factors. This even goes beyond outward physical limitations and into metabolic and psychological disabilities. Some people struggle with chronic fatigue, muscle pains and mood disorders that can make working out seem like an insurmountable chore.

However, regardless of your situation, getting some exercise is one of the best things you can do for yourself. Short of being completely paralyzed, most disabilities still allow at least some level of fitness activity. It might not be the 30 minutes of moderate-intensity exercise that experts recommend for the average person, but whatever you can do will improve your physical capacity and overall health. Furthermore, it could end up still having a dramatic benefit. If you spend a great deal of your time being immobile or you can't use a significant part of your body, your metabolic requirements aren't as high, so you get more from less activity.

If you feel too fatigued to work out, it's understandable if you don't want to expend the energy you have left for something more important. However, you should be aware that forcing yourself to do even a light workout can help. Research has found that exercise actually improves energy levels in those suffering from chronic fatigue. The first step is always the hardest, but persistence wins in the end.

Of course, the nature of your disability will determine what kinds of exercise you're able to do. You'll need to take this into consideration when choosing a gym or purchasing fitness equipment. If you still have decent control of your upper body, lifting free weights is a highly recommended activity. Begin with a low weight and gradually work your way up. The more you do this, the more you tone and condition your muscles. This can dramatically improve your strength and range of motion, allowing you to be more independent in your daily life.

Lifting Weights
Lifting weights also has other benefits. It helps prevent and reverse muscular atrophying, which is associated with chronic inactivity. Furthermore, it can increase bone density. If your disability resulted from broken bones, weight training can ensure that they heal properly and help reduce the risk of additional fractures later on.

Swimming
Swimming is another form of exercise that can greatly improve your independence. Since it's a low-impact activity that also allows you to float, it's ideal for people who are unable to stand. In addition, the water's temperature can reduce inflammation, resulting in lessened dependence on pain and anti-inflammatory drugs. Many people living with a disability also find physical therapy helpful, especially during the early stages. A qualified and well-trained professional will work with you to create a fitness regimen that fits your particular needs.

Accommodations
When considering exercise options, make sure that the you have have the right car accommodations. In order to get to the gym or the swimming pool, you may need a wheelchair van or a wheelchair ramp. These accommodations will make it easier to get to and from your work-out destinations. Also, be sure to check that the work out facilities have disability restrooms and elevators.

Gaining independence with a disability is possible. Working out a great way to help you feel better through moving your muscles and getting endorphins, no matter what kind of disability you have. Even if it’s just a light workout, the benefits will surely show you to adjust and live a healthier and more fit life.

Read more at Sporkability.org 
Follow Paisley on twitter @PaisleyHansen
Read more of Paisley Hansen work at the Mobility Resource 

New Crohn's disease treatment trial now open to those in U.S.

2014-02-18 13:03
Crohn's Research
Qu Biologics has been testing an immunologic agent for treating Crohn's disease in Canada. Now clinical trials are available in the United States that uses Site Specific Immunomodulators (SSIs) for managing the form of IBD.
The biological pharmaceutical company reopened clinical trials in the U.S because of so much interest, "said Dr. Hal Gunn, M.D. in a press release.
According to the company, 30 U.S. patients will be accepted into Phase 1/2 clinical trials to investigate the safety and efficacy of QBECO SSI for Crohn's disease. The trial is located in Vancouver, Canada.
Read the full article at Exam Heath 
(http://www.emaxhealth.com/1020/new-crohns-disease-treatment-trial-now-open-those-us)

Scientists Confirm There is a Second, Secret DNA Code That Controls Genes

7th January 2014
By Michael Forrester
Guest Writer for Wake Up World
The fascinating and recent discovery of a new, second DNA code further lends credence to what metaphysical scientists have been saying for millennia — the body speaks two different languages.
Since the genetic code was deciphered in the 1960s, researchers have assumed that it was used exclusively to write information about proteins. But biologists have suspected for years that some kind of epigenetic inheritance also occurs at the cellular level. The different kinds of cells in our bodies provide an ideal example of this; skin cells and brain cells have different forms and functions, despite having exactly the same DNA.
Read the full article at Wake Up - World 
(http://wakeup-world.com/2014/01/07/scientists-confirm-there-is-a-second-secret-dna-code-that-controls-genes/)

Scientists Make Living Brain Cells from Deceased Alzheimer's Patients

Scientists at The New York Stem Cell Foundation (NYSCF) Research Institute, working in collaboration with scientists from Columbia University Medical Center (CUMC), for the first time generated induced pluripotent stem (iPS) cells lines from non-cryoprotected brain tissue of patients with Alzheimer's disease.


NYSCF SCIENTISTS MAKE LIVING BRAIN CELLS FROM DECEASED ALZHEIMER’S PATIENTS BIOBANKED BRAIN TISSUE

New study shows ability to make living human cells from biobanked brain tissue

These new stem cell lines will allow researchers to "turn back the clock" and observe how Alzheimer's develops in the brain, potentially revealing the onset of the disease at a cellular level long before any symptoms associated with Alzheimer's are displayed.

Read the full article at Alzheimer's Reading Room

(http://www.alzheimersreadingroom.com/2014/01/scientists-make-living-brain-cells-from.html)

First use of retrograde gene therapy on a human heart


Procedure delivers stem cells to the heart to repair damaged muscle and arteries
December 2, 2013

A new procedure designed to deliver stem cells to the heart to repair damaged muscle and arteries in the most minimally invasive way possible has been performed for the first time by Amit Patel, M.D., director of Clinical Regenerative Medicine and Tissue Engineering and an associate professor in the Division of Cardiothoracic Surgery at the University of Utah School of Medicine.
Patel started investigating cell and gene-based therapies for the treatment of heart disease 12 years ago, but only recently received FDA approval to try the therapy on Lively, who was the first of several patients anxious to receive the treatment.
More than 6 million people are currently living with heart failure. As the condition progresses, patients’ options are usually limited to a heart transplant or assist devices, such as an artificial heart. Patel wanted to find a way to intervene in the progression of heart failure before a patient advanced to the point of needing a heart transplant or device.
Read the full article at Kurzweilai
(http://www.kurzweilai.net/first-use-of-retrograde-gene-therapy-on-a-human-heart)

6 Surprising Signs of an Unhealthy Heart


by Melanie Haiken, Caring.comNovember 14, 2013
We’ve all read the signs of a heart attack listed on posters in the hospital waiting room. But what if there were other, earlier signs that could alert you ahead of time that your heart was in trouble?
It turns out there are. Researchers have done a lot of work in recent years looking at the signs and symptoms patients experienced in the months or even years leading up to a heart attack. “The heart, together with the arteries that feed it, is one big muscle, and when it starts to fail the symptoms can show up in many parts of the body,” says cardiologist Jonathan Goldstein of Saint Michael’s Medical Center in Newark, New Jersey. Here are seven surprising clues that your heart needs a check. Any of these signs — and particularly two or more together — should send you to the doctor for tests.

Sexual problems

Something cardiologists know but the average guy doesn’t: Erectile dysfunction (ED) is one of the best early tip-offs to progressive heart disease. “Today, any patient who comes in with ED should be considered a cardiovascular patient until proven otherwise,” says Goldstein. In women, reduced blood flow to the genital area can impede arousal, make it harder to reach orgasm, or make orgasms less satisfying.
Scary stat: Researchers at the Mayo clinic followed men ages 40-49 with erectile dysfunction and found they were twice as likely to develop heart disease as those with no sexual health problems. Another study looked backward and found that two out of three men being treated for cardiovascular disease had suffered from erectile dysfunction, often for years, before they were diagnosed with heart trouble.
Why it happens: Narrowing and hardening of the arteries restricts blood flow to the penis, which can give men trouble when it comes to getting or keeping an erection. And because those arteries are smaller than the ones leading to the heart, erectile dysfunction can occur before any other sign of artery stiffness. Lack of oxygen can also lead to ongoing fatigue and weakness, which can sabotage libido, so lack of desire may accompany lack of success.
What to do: If you or your partner has difficulty getting or maintaining an erection or has problems with sexual satisfaction, that’s reason enough to visit your doctor to investigate cardiovascular disease as an underlying cause. Get a full workup to assess possible causes of erectile dysfunction or difficulty with orgasm. (Guys, see your GP, not just a urologist; gals, don’t just see an ob/gyn.) If your doctor doesn’t mention heart tests, request them.
Read the full article at Banoosh
(http://banoosh.com/blog/2013/11/14/6-surprising-signs-of-an-unhealthy-heart/)

Top Five Marijuana Strains For PMS

Posted by  at 8:47 AM on November 15, 2013


There’s a serious lack of information around how cannabis can help female-specific health issues. It’s interesting to see how much research is out around issues like PTSD and other forms of anxiety, yet the health issues that disproportionately affect women are rarely talked about. This isn’t to say that women don’t also suffer from these issues, but things like premenstrual syndrome (PMS or PMDD) or menopause are hardly mentioned in relation to cannabis. Why is this? Possibly because the cannabis industry is almost always synonymous with bro-culture, pandering to twenty-something male stoners. I don’t think this trend was necessarily intentional, but gender-based bias within the cannabis industry has been largely overlooked, like most other male-dominated industries.
Due to unexamined sexism within the cannabis industry, research around female- specific health issues like PMS is still widely unknown. It’s much more common to figure out what a patient needs off the basis of the male body, leaving “lady” aliments in isolation. This whole problem pissed me off, so I decided to compile a small list of strains that have been known to help PMS from Brightside Community Foundation-the non-profit medical marijuana dispensary I work at. Many women are unaware of the benefits that cannabis can provide their health issues. As a woman pioneering her way through the cannabis industry, I want to begin to start providing that information in order to address the needs of women that are all too often left out of the conversation.
Read the full article at the Weed Blog 
(http://www.theweedblog.com/top-five-marijuana-strains-for-pms/)

Drinking and Diabetes Don't Mix


By David MendosaHealth GuideThursday, November 07, 2013



Compared with some other stuff we put in our mouths, the trouble with alcohol might not seem to be a big deal for most of us who have diabetes. We all know, of course, that even a little alcohol can mean big trouble for those of us who can’t handle alcohol in moderation.

More than 30 percent of adult Americans have “experienced alcohol use disorders during their lifetimes,” according to a 2007 study in JAMA Psychiatry. That study also found that 17.8 percent have alcohol abuse problems and that 12.5 are alcohol dependent.

Our genes are responsible for about half of the risk for alcoholism, according to theNational Institute on Alcohol Abuse and Alcoholism. The other half is our environment, which includes our friends.

If you were sure from your experience that you can handle a little alcohol and if you were a middle-aged or older man who didn’t have diabetes, a little alcohol might actually be good for you. That’s because the response of some people to different amounts of alcohol seems to be quite unusual. It’s not something that could be plotted on a straight line. Researchers call it a U-shaped or J-shaped curve, where among middle-aged and older men, abstinence seems to be a little worse than moderate consumption, while heavy consumption is much worse.

Read the full article at Health Central 

(http://www.healthcentral.com/diabetes/c/17/164009/drinking-diabetes-don-mix/)

DNA damage may cause ALS

by Anne Trafton

Amyotrophic lateral sclerosis (ALS) — also known as Lou Gehrig’s disease — is a neurodegenerative disease that destroys the neurons that control muscle movement. There is no cure for ALS, which kills most patients within three to five years of the onset of symptoms, and about 5,600 new cases are diagnosed in the United States each year. 

MIT neuroscientists have found new evidence that suggests that a failure to repair damaged DNA could underlie not only ALS, but also other neurodegenerative disorders such as Alzheimer’s disease. These findings imply that drugs that bolster neurons’ DNA-repair capacity could help ALS patients, says Li-Huei Tsai, director of MIT’s Picower Institute for Learning and Memory and senior author of a paper describing the ALS findings in the Sept. 15 issue of Nature Neuroscience...

Read more at MIT 

http://web.mit.edu/newsoffice/2013/dna-damage-may-cause-als-0915.html

Parents’ Feeding Choices May Raise Baby’s Risk for Celiac Disease

October 7, 2013 | By Health Editor

baby-bottle-formula-400x400By Steven Reinberg
HealthDay Reporter
MONDAY, Oct. 7 (HealthDay News) — Delayed introduction of gluten to a baby’s diet and breast-feeding longer than one year appear to increase the risk of celiac disease, researchers report.
People with celiac disease have an immune reaction to gluten, a protein found in wheat, rye and barley. Over time, this abnormal response can damage the small intestine and restrict nourishment, affecting a child’s growth and development.
“Avoidance of gluten as long as possible does not seem to be advisable,” said lead researcher Dr. Ketil Stordal, a researcher and consultant pediatrician at the Norwegian Institute of Public Health in Oslo...
http://news.health.com/2013/10/07/parents-feeding-choices-may-raise-babys-risk-for-celiac-disease/

Health care through the lens of a technology entrepreneur



If you want to see the future of health care, the can’t miss conference of the year is the Health Innovation Summit hosted by Rock Health in San Francisco. As a practicing primary care doctor, I had the opportunity to view health care through the lenses of technology entrepreneurs. I thought the conference was even better than the one I attended last year. Absent was the provocative rhetoric by 2012 keynote speaker Vinod Khosla who noted that “technology will replace 80 percent of doctors.”
What continued to remain was the curiosity, confidence, enthusiasm, and optimism that health care and medical care could be even better and the willingness of entrepreneurs to fix a problem and build a business around it.
Themes I found particularly interesting included the following:
  • Make health care smarter by creating platforms, whether software or hardware, like wearables, to collect patient data and to analyze data, whether at the individual or population level, to gain insights and change behavior or predict outcomes.
  • Make health care better by using expertise from other fields, like the wisdom of the crowds, to provide patients more accurate diagnoses particularly when it revolves around a constellation of systems more likely due to a rare diagnosis.
  • Make the health care a more personalized care experience comparable to other industries with the use of information technology and mobile computing.
  • The creation of the ACA will fundamentally shift how patients will access care. This provides a tremendous opportunity for entrepreneurs.
  • Entrepreneurs believe that they can both do good, improve the health and medical care of individuals and the community, and make money.
Read the full article at Kevin Md
(http://www.kevinmd.com/blog/2013/09/health-care-lens-technology-entrepreneur.html)

Robotic surgery complications underreported, study finds


Johns Hopkins researchers say "slapdash" reporting means complications from robot-assisted surgery are underreported to the FDA. 
Researchers from Johns Hopkins Medicine have published a study in the Journal of Healthcare Quality suggesting complications arising from robot-assisted surgeries are underreported to the Food and Drug Administration.

Between 2007 and 2011, the number of robot-assisted procedures performed increased by more than 400 percent in the U.S. By 2011, there were 1,400 surgical robots installed in U.S. hospitals, up from 800 in 2007.

The Johns Hopkins team found that of the more than one million robotic surgeries performed since 2000, just 245 complications -- including 71 deaths -- were reported to the FDA.

"The number reported is very low for any complex technology used over a million times," said Martin Makary, an associate professor of surgery at the Johns Hopkins University School of Medicine.

Read the full article at UPI
(http://www.upi.com/blog/2013/09/03/Robotic-surgery-complications-underreported-study-finds/6481378232051/#ixzz2eWEQB0nb)

Dual Dilemma: The Problem of Co-Occurring Disorders

Oldie (slightly) but goodie article!

December 10, 2012 by C. Scott McMillin


Imagine you’re one of those people who suffer from both alcoholism and diabetes.
You manage to quit drinking. But your blood sugar still periodically runs out of control. You suffer the very unpleasant (and sometimes dangerous) effects of that.
Conclusion: Quitting drinking helped a lot. But until you get your blood sugar managed, you’re going to feel like crap. Or worse.
Same thing applies if the second disorder is depression instead of diabetes. Some people quit drinking and find that in some respects, they’re actually more depressed. That’s a sign there may be a depressive disorder involved. One that requires treatment, too.
It took a while to figure out the best way to address this dilemma. Physicians tried treating the alcoholism first and then sending the patient on to psychiatry. But many were so depressed they couldn’t manage to stay sober in the first place.

Read more at Treatment and Recovery Systems 

(http://treatmentandrecoverysystems.com/library/dual-dilemma-the-problem-of-co-occurring-disorders/)

The Most Efficient Health Care Systems In The World (INFOGRAPHICS)


 By  Posted: 
As supporters and opponents of the Affordable Care Act debate the best way to overhaul a clearly broken health care system, it's perhaps helpful to put American medicine in a global perspective.
The infographic below is based on a recent Bloomberg ranking of the most efficient countries for health care, and highlights enormous gap between the soaring cost of treatment in the U.S. and its quality and effectiveness. To paraphrase Ricky Ricardo, the American health care system has a lot of 'splainin' to do.
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It's remarkable how low America places in health care efficiency: among the 48 countries included in the Bloomberg study, the U.S. ranks 46th, outpacing just Serbia and Brazil. Once that sinks in, try this one on for size: the U.S. ranks worse than China, Algeria, and Iran.
But the sheer numbers are really what's humbling about this list: the U.S. ranks second in health care cost per capita ($8,608), only to be outspent by Switzerland ($9,121) -- which, for the record, boasts a top-10 health care system in terms of efficiency. Furthermore, the U.S. is tops in terms of health care cost relative to GDP, with 17.2 percent of the country's wealth spent on medical care for every American.
In other words, the world's richest country spends more of its money on health care while getting less than almost every other nation in return.
It's important to note that this data doesn't necessarily reflect the best health care in the world; it is simply a measure of overall quality as a function of cost. Bloomberg explains its methodology as such:
Each country was ranked on three criteria: life expectancy (weighted 60%), relative per capita cost of health care (30%); and absolute per capita cost of health care (10%). Countries were scored on each criterion and the scores were weighted and summed to obtain their efficiency scores. Relative cost is health cost per capita as a percentage of GDP per capita. Absolute cost is total health expenditure, which covers preventive and curative health services, family planning, nutrition activities and emergency aid. Included were countries with populations of at least five million, GDP per capita of at least $5,000 and life expectancy of at least 70 years.
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So what can the U.S. learn from the many countries that get more bang for their health care buck? Unsurprisingly, there is no one formula for success when it comes to efficient medical care. The systems that rank highly on Bloomberg's list are as diverse as the nations to which they belong. The unifying factor seems to be tight government control over a universal system, which may take many shapes and forms -- a fact evident in the top-three most efficient health care systems in the world: Hong Kong, Singapore, and Japan.
Read the full article at Huffington Post 
(http://www.huffingtonpost.com/2013/08/29/most-efficient-healthcare_n_3825477.html?utm_hp_ref=tw)

High-flying pilots at increased risk of brain lesions

By:  American Academy of Neurology / August 19, 2013

A new study suggests that pilots who fly at high altitudes may be at an increased risk for brain lesions. The study is published in the August 20, 2013, print issue of Neurology, the medical journal of the American Academy of Neurology.


For the study, 102 U-2 United States Air Force pilots and 91 non-pilots between the ages of 26 and 50 underwent MRI brain scans. The scans measured the amount of, or tiny  associated with  in other neurological diseases. The groups were matched for age, education and.
"Pilots who fly at altitudes above 18,000 feet are at risk for decompression sickness, a condition where gas or atmospheric pressure reaches lower levels than those within body tissues and forms bubbles," said study author Stephen McGuire, MD, with the University of Texas in San Antonio, the US Air Force School of Aerospace Medicine and a Fellow of the American Academy of Neurology. "The risk for decompression sickness among Air Force pilots has tripled from 2006, probably due to more frequent and longer periods of exposure for pilots. To date however, we have been unable to demonstrate any permanent clinical neurocognitive or memory decline."
Read more at Medical Xpress

5 Clever Comebacks to Deface Disability Stereotypes

Posted on:  


Encountering stereotypes when you have a disability is more commonplace than rain in Seattle. How people with disabilities respond to these stereotypes can be all over the board.
Some of us get angry, some of us are highly forgiving and then a few of us use each negative interaction as a way to change people’s minds; and we use humorous and clever ways to do it. Hey, someone has to do the dirty work.
If you’re sick of hearing the same stereotypes, then it may be time for you to start employing clever ways to deface disability stereotypes too.  They won’t just change on their own. All of us need to lend our help to this cause.  If you have no idea where to begin on your quest to change stereotypes, then this list is for you. Read on for 5 brilliant ways to deface disability stereotypes.
Read the full article at Mobility Resource 
(http://www.themobilityresource.com/5-clever-comebacks-to-deface-disability-stereotypes/)