Showing posts with label photography. Show all posts

Mother’s Photos Capture What It’s Like to Live With Autism

On the day Rosie Barnes’ 3-year-old son, Stanley, was diagnosed with autism, the mother of two sat in her living room with the lights off. In front of her, leaflets from the doctor’s office spewed information about the developmental disorder. Barnes began to weep as she read through statistics, facts and definitions. She couldn’t find comfort in what felt like pages of jargon-filled instructions. Of course, she wanted to learn about autism, but she wanted to go deeper than that. She wanted to understand what her child was feeling.
“I’ve always felt that for me, text books weren’t necessarily a good starting place… I could never actually find [Stanley] in the textbooks and I was left feeling confused and anxious,” Barnes, 48, told The Mighty in an email.
Barnes, a London-based photographer, had been composing pictures of Stanley since he was born; she was fascinated by her son’s point of view. But after his diagnosis, she realized she had actually been photographing autism’s point of view.
“Stanley was living in a world far more complex than I could ever imagine,” Barnes told The Mighty. She wanted to document that. Today, Stanley is 17 years old, and Barnes still captures his life in a photo book called, “Understanding Stanley,” where pictures are accompanied by statements from adults on the autism spectrum or from those who support individuals with autism.
Understanding Stanley swing
“Stanley needs a very clearly defined framework and fixed personal routines to keep him calm and happy.”– Rosie Barnes
Read the full article at The Mighty 
(http://themighty.com/2014/05/mothers-photos-capture-what-its-like-to-live-with-autism/)
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Timothy Archibald talks Photography and Autism Awareness

Timothy Archibald talks Photography and Autism Awareness


Timothy Archibald has received acclaim in the news for taking photos of his son Eli who has autism. The “ECHOLILIA Series” as Timothy calls it was started when his son was 5 and lasted untill he was 8. You can see more photos from his series here.

Can you tell us more on how the Echolilia Series started and what you hoped to gain from it?
Well, like most things, it just began as a reaction. My son was five, had just started Kindergarten, and suddenly every moment and every topic in the house revolved around Eli. The school wants to know why is he acting a certain way? The parents have questions about Eli…Eli this, Eli that….everyone was suddenly trying to address this unusual behavior or simply this bit of unusual something that inhabited Eli. My wife and I didn’t really know anything was up…we just knew he always was a challenge. But after our second son grew older and we started to see what a non autistic child was like…we started to get an idea that things were different with Eli. In an attempt to gain some control over this situation, I begain photographing him during times we were together and alone. 
Like most kids, you can’t really make Eli do something if he doesn’t want to. So he wasn’t very interested in being in the photo alone. But if he could collaborate, if he could suggest the pose, the idea the structure, then he was very much into it. That began our process.
Read the full article at Autism Speaks 
(http://www.autismspeaks.org/news/news-item/timothy-archibald-talks-photography-and-autism-awareness)

Brilliant photography of the faces of autism – Evidence and Artifacts: Facing Autism


We are honored to feature a new show on the network hosted by the incredible Dr Gil Gippy, co author of Respecting Autism with the late Stanley Greenspan. For his premiere he is bringing us a very special guest, Christopher Gauthier, a brilliant photographer and autism advocate who has photographed some of the most renowned experts in the autism community as well as the beautiful children they give a voice. The premiere of Respecting Autism will air Sunday December 8th at 9pmE/6pmP
Evidence and Artifacts: Facing Autism, the brilliant photography of Christopher M. Gauthiér’s in collaboration with his wife Jacqueline, Autism parents and advocates. Click on any picture to enter the gallery.
Evidence and Artifacts: Facing Autism is a long-term photographic project documenting the growing number of individuals, families and invested teachers, advocates, clinicians, medical professionals and researchers on the front lines fighting back against disability. Facing Autism is both a call to action, and a way to honor those who are rising to the challenge autism presents everyday.
Read more at the Coffee Klatch 
(http://thecoffeeklatch.com/brilliant-photography-of-the-faces-of-autism-evidence-and-artifacts-facing-autism/)

Life as an autistic triplet: The startlingly intimate images that reveal the daily routine of 18-year-old brothers who ALL suffer from the same condition





A photographer has captured candid and incredibly moving photographs of teenage triplets, all of whom suffer from autism.

Over the course of two years, José Antonio de Lamadrid, 50, from Seville, has followed three 18-year-old brothers who were all born with the same complex neurological disorder.

Mr Lamadrid wanted to follow Alejandro, Álvaro and Jaime Morillo Aguilar because he was fascinated and touched by their interaction. 

Mr Lamadrid also has personal experience of the condition as his nephew is autistic.

Jaime, Alejandro and Alvaro
Here Jaime, Alejandro and Álvaro (left to right) are on their way to school in their parent's car. It took three years for them to be diagnosed with the complex neurological disorder

The condition is characterised by a difficulty to communicate and socialise yet the three men have a visibly strong brotherly bond.
The men's parents, Noelia and Jaime, said that it was shortly after their sons turned one that they started to notice differences between them and children of the same age.

They said that the boys did not respond to their calls and seemed disinterested by things that should have fascinated the them - planes in the sky, barking dogs and offerings of sweets all went unnoticed.

Triplets
Here the triplets' clothing is laid on the bed they sleep in during summer. They like to wear the same clothes as each other

Alejandro
Isolated: Alejandro is pictured in the school playground. The image captures how difficult it can be for autistic people to interact with their peers and the wider world

Jaime and Alejandro
Every day, Jaime and Alejandro write their diary, documenting exactly what they have done, including minute details such as playing on their Nintendo console. Those with autism tend to be obsessive about their routine

Jaime and Alejandro
This photograph captures the touching moment that father Jaime washes and shaves his son, Alejandro. Despite their age, the triplets will remain childlike and vulnerable for the rest of their life

It took three years and a raft of tests for them to be diagnosed. They were not deaf, there were not obvious genetic ot neurological problems.

'When you do not have any of these symptoms, you have autism,' Noelia said.

Álvaro suffers with the most severe learning difficulties out of the three because he suffered a brain injury in childhood. As a result he attends a specialised autism centre. 

Alejandro and Alvaro
Alejandro and Álvaro may be 18-years-old but their condition makes them remarkably childlike. Here they are photographed playing cowboys at home

Alejandro
Alejandro is fixated by an image of himself in a mirror of a supermarket. Autism removes a person's understanding of what is acceptable in social situations

His brothers Alejandro and Jaime however attend the local high school that offers special classes to help them integrate with those unaffected by the condition.

As with many people suffering autism, the men are very keen to stick to a routine.

They tirelessly document their days - even recording the minutiae of atching TV, washing the dishes and, as one diary entry says, 'eating a coconut yoghurt and playing Nintendo'.

Every Friday the men go to the town library to rent out movies. They also visit their local leisure centre to socialise with other children who have autism.

Jaime
Here Jaime enjoys being pampered by his mother and aunt in preparation for a costume party. The photographer's images give a rare insight into the complex world of men living with a condition that remains relatively misunderstood

Álvaro
Álvaro always carries small objects in his hands - everyday items that he calls 'inventions'. Autism is often characterised by obsessive tendencies, such as becoming fixated by seemingly unimportant objects

triplets
Here the brothers play, supervised by a social worker, while they wait to be picked up by their parents from their weekly club. Every Friday they play games and meet other people with autism at a local recreation centre

Alejandro is an accomplished artist and enjoys playing puzzles. 

Since the age of six he has been able to complete 1000-piece jigsaws in a matter of hours. 

Álvaro, always carries what he refers to as 'inventions'. Objects include clay figures and everyday household objects such as combs, pegs, scissors and pencils.

Jaime has a incredible memory - for example, if he is given a date he is able to tell you what day of the week it was, even if it was many years ago.

View the whole article at Daily Mail 

Photographer Captures His Twin Brother’s Cerebral Palsy Through Breathtaking Images


By: Tasneem Nashrulla / posted on August 23, 2013 at 5:30pm 


For 13 years, Christopher Capozziello dealt with the grief and guilt of being the “healthy” brother by photographing his cerebral palsy-afflicted twin.



Christoper Capozziello, a Connecticut-based freelance photographer, started taking pictures of Nick, his twin brother who has cerebral palsy, when they were 20. Now, 13 years later, Christopher wants to tell their story through a book, The Distance Between Us, which is being funded by a Kickstarter campaign.

Christopher spoke to BuzzFeed about the experience of capturing his brother and their relationship through the years.

“I first began making pictures of my brother at a time when I was trying to understand the kind of photographer I was becoming.”

"I first began making pictures of my brother at a time when I was trying to understand the kind of photographer I was becoming."
“Without any intention of telling our story, it emerged years later out of a steadily growing archive that chronicled his experiences and unknowingly at that point, my grief.”

“In the very beginning he didn’t like it, so I would sneak one or two pictures and then he’d realize what I was doing, and he’d turn his face away from my camera or flip me the bird.”

"In the very beginning he didn’t like it, so I would sneak one or two pictures and then he’d realize what I was doing, and he’d turn his face away from my camera or flip me the bird."
“One of the earliest pictures was of him in bed, waking from a cramp. I walked into our bedroom, and the sunlight on him looked beautiful. I crouched to make a picture and the shutter from my old Nikon was so loud that it startled him. He punched me in the face.”

View the full article at Buzzfeed