Showing posts with label education. Show all posts

Mental Illness and School: Parents and Teachers This Year CAN Be a Success!

By Leisl Stoufer

Our son, Cody, began presenting signs that something was “wrong” at a very young age.  The first “red flag” went up when he was just eighteen months old.  By the time he was two we were becoming more and more concerned, but as new parents we assumed that our “Terrible Twos” were just exceptionally terrible.
But the “Terrible Twos” turned into the “Horrible Threes” and the pre-school years were even worse!
Exhausted, we decided to enroll Cody in a pre-school program.  As an only child, we thought that interaction with other kids would be a good idea.  We found a reputable program and  signed Cody up.  We were thrilled.
But almost immediately, I began receiving phone calls.
“Cody is in trouble”
“Cody didn’t follow directions.”
“Cody was aggressive.”
“Cody wasn’t able to be still during story time.”
“Cody was written up again today”
“Parents are complaining about Cody”
And finally….
“Cody can no longer attend our program.”
And so we tried another school.
And another.
And another after that.
We got kicked out of every one.
All I heard was how difficult Cody was and how I had no control over my child.
But they couldn’t control him either.
I began to internalize the criticism and before long I was convinced I was a terrible mom.  All the other kids behaved.  Why couldn’t I get it right?
My self esteem was shot.
I can only imagine how Cody must have felt.
I knew that Cody was a challenge.  I lived with him.  (Believe me,  I knew!)  But I needed respite and I needed help!  If I couldn’t handle him and the professionals couldn’t handle him, what were we supposed to do?
Desperate for help and answers, we tried one more pre-school, at the local Baptist Church, and we were blessed with an incredible teacher named Ms. Pam.
Ms. Pam worked with Cody and she was willing to “think outside the box”.  Instead of making Cody sit still during story time, she allowed Cody to play with legos or blocks.  When she asked him to tell her about the story, he was able to recite the storybook word for word.  Her system worked!  Ms. Pam loved Cody and she recognized Cody as a precious child of God.  Cody graduated from Ms. Pam’s class and he even participated in the end of the year program.  We will never forget Ms. Pam.
The following year we enrolled Cody in a Pre-K special education program.  When I went to pick Cody up the first day, I dreaded hearing what the teacher would say.  Bracing myself for criticism, tears filled my eyes when the teacher told me that Cody was a helper and he had an excellent vocabulary.  She only offered praise.
Through my tears, I looked at her curiously, waiting  . . .  and wondering . . .
But before I could ask my question, she answered it.  She said, “You already know all of the bad things. I want you to know the good things.”
I still get choked up thinking about those words.
Twelve years and multiple hospitalizations later, Cody  is now sixteen-years-old.  He has a diagnosis of Bi-Polar Disorder and ADHD, he is oppositional and defiant and he has sensory processing issues. Cody is a sick kiddo, but he is also very smart, very mechanical, incredibly loving and kind, he is artistic, and he has a great sense of humor.  We adore Cody.
And Cody suffers from mental illness.
Cody is currently getting his education at a residential treatment center in Utah. This is his second time to be placed in a residential setting.  Sending our son to live somewhere else has been devastating, yet we have fought for these services.  Cody is sick and Cody requires a higher level of care.  The best news is that Cody is thriving in his new placement.  We are thrilled!
Over the years, as we have navigated our nation’s failed mental health care system, and worked with our educators to help our son, I have learned some important lessons .  Thankfully, I no longer hang my head in guilt and shame . . .  In fact, I am proud to say I have learned to effectively advocate for my child.  With the help of our school district, we have finally found some success.
Parents and Teachers, this is for you.  As we enter into a new school year, I want to encourage you. You all play a significant role in the lives of children affected by brain disorders.  Your partnership is critical to the success of the child...
Read Leisl's advice at Bold Faced Ministries.
http://www.leislstoufer.com/?p=1025

8 Ways to Ask (and Not Ask) About Why I Look Different

By Lisa Goodman-Helfand
A friend recently asked me, “Lisa, how do you want people to approach the fact that you look different? What exactly would you like people to do or say when they meet you and are interested in learning about your disease (scleroderma)?” I’ve gotta say, it’s a stumper! Humans are curious creatures. It’s natural and healthy to wonder why people vary from the norm either in appearance or behavior.
I will attempt to answer this tricky question, but before I do, I must first give you a sampling of how I do not want people to approach the topic with me.

1. Blurting out, “What’s wrong with you?” or spontaneously asking, “Why are you sooooo skinny?”
Don’t go up to strangers and ask them personal questions about their appearance. It’s weird when some random patron at the grocery store stares at my splotchy, mangled hands as we examine the produce and says, “What’s wrong with your hands?” This person is not invested in my well-being. Their inquiry is blunt and off-putting. My fantasy response is, “I’m allergic to weird strangers who ask me intrusive questions.”

2. Exclaiming, “Congratulations! Do you know if you’re having a boy or a girl?” 
I have super skinny arms and legs but a disproportionally large mid-section. Possible contributing factors are: the aftermath of eight major abdominal surgeries, distention caused by scleroderma, my ostomy bag inflating, or my affinity for donuts and total lack of willpower.

3. Asking, “Are you a witch?”

4. Pretending to not notice I look different when meeting me, but determined not to pursue a friendship with me because I’m weird-looking...

Get the full story at The Mighty. 
http://themighty.com/2015/06/8-ways-to-ask-and-not-ask-about-why-i-look-different/

Legislation to provide improved education for students with vision and hearing disabilities

WASHINGTON: The American Foundation for the Blind (AFB) announced the introduction of H.R. 4040—the Alice Cogswell and Anne Sullivan Macy Act, the most comprehensive education legislation for students with vision or hearing disabilities to date.
Person reading Braille.“Right now, our schools are not prepared to help children who are vision disabilities or hearing disabilities  develop to their fullest potential, and we are determined to change that,” said Paul Schroeder, vice president of programs and policy at AFB. “H.R. 4040 would provide vital resources and establish requirements to help students with vision and hearing disabilities excel in the classroom, at home, and in their communities.”
The legislation would ensure:
  • Every child who is deaf and every child who is blind, regardless of whether they have additional disabilities, will be properly counted and served
  • Each of a child’s unique learning needs will be properly evaluated
  • States will engage in strategic planning to be sure that they can in fact meet each child’s specialized needs
  • The U.S. Department of Education will do its part to hold states and schools accountable
  • Students who are deaf will be served by qualified personnel
  • Students who are blind will receive state-of-the-art services and skills supported through a new major national collaborative initiative addressing their unique learning needs
Read the full article at Global Accessibility News 
(http://globalaccessibilitynews.com/2014/02/17/legislation-to-provide-improved-education-for-students-with-vision-and-hearing-disabilities/)

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Student Toolkit - Managing Your Disability

Student Toolkit - Managing Your Disability

Making the transition from education into employment is a challenging process for anyone however it can be even more daunting for individuals who have a disability or long term health condition. In addition to the usual challenges associated with applying for jobs and attending interviews, you may have additional ones to consider as a result of your disability.
These may include questions around how to account for ‘differences’ on your cv, when to inform a potential employer that you have a disability, how to inform them, what support will be available to you during the recruitment process and whether there is anyone else in the organisation in a similar situation to yourself.
The following sections aims to address the common issues and concerns raised by students with a disability or long-term health condition. Since disability is such a broad issue and everyone is different, the information provided here is generic as opposed to disability specific.
Read the full article at Great With Disability 

(http://www.greatwithdisability.com/index.php/GWDtoolkit/disability/example_lettes)